There is so much to post, so much to update yet I'm so focused on something I'm finding it hard to deal with much else. For over 7 years we have fought for our Kyle. For 7 years there has always been a next step....a new hope...another dream. Right now we are living in the land of no new steps. No other options.... When we got home from Kyle's Make A Wish it was the first time in over 7 years that there was no next step for me to focus on, no next step to hope for. It was the first time I had to force myself to realize and deal with the fact that this is our life...there is no miracle cure out there for our sweet boy. I can say I didn't handle our first week home well, I felt so out of sorts and incredibly sad. We are maintaining our sweet boy and that is not a good feeling for me. I'm trying to take it a day at a time, trying to not focus on the future but instead focus on and be grateful for today...for the most part that's working for me but there are moments where all this just seems like to much...to painful. I so desperately want to fix this..
Our Make A Wish trip was wonderful, to have our family all in the same place for a week of fun was priceless...Give Kids the World which was the resort we stayed at was beyond amazing..they treated all 3 kids like little heroes and that was great for all of them. I'm pretty sure the fact that they had a pool that Kyle could walk into was one of our guy's favorite things on the trip I know that swimming is one of the things that Kyle misses the most. It was beautiful to watch his sweet face when he walked into the pool...priceless.
If anyone is interested in the Team Kyle Energy Armor bands...please email my girls at firstname.lastname@example.org We need your size and shipping info <3 thank you EA for this incredible gift...your hearts are beyond anything I could describe....
To see pictures of the bands you can check out Kyle's fb page... www.facebook.com/livinglifefortoday
Thank you for loving us. I know it's not always easy but for those of you still sticking around...thank you.